Too busy to blog!!!! or why I hate Children In Need so much I found time to blog!

It seems that at the minute I am too busy to blog. In fact I'm too busy to think some days. It's one of the joys of being a freelancer, that when a work offer comes in you have to say Yes. With no way of knowing when the next job might appear, you have this terror that this offer might be the last for a while. Even if the work is rolling in, you can't be sure that it will stay that way. So that's why my blog has been sitting dormant recently.

Annoyingly there have been a load of things I wanted to blog about. Almost every day something came up that got the blood boiling and the fingers hovering over the keyboard. But work got in the way, so the time past. The thing that I really wanted to blog about this week was Children in Need. As someone who appeared on something very similar at the start of my career, with a two day non-stop live appearance as presenter on the Thames Telethon back in 1992, and who had that career severely damaged by the bad reaction of people who felt that charity was wrong, you would have thought I would be in favour of this yearly charity fest. But you would be wrong. You see, on many levels the whole thing is equally wrong.

Let's think about the portrayal of disability first. Anyone who reads my blogs and articles will know that portrayal is very important to me. I feel that the media should try so much harder to ensure that it changes the way it covers disability, yet with this kind of charity event negative portrayal is essential to keep the money coming in.

Poor little crippled kids... they need your help. Their lives are so awful that without your money they will only be sad and their future is bleak. Give generously. Your money will make their tragic lives a little better. Poor little things, it so sad that they are the way they are. Aren't you lucky?

Of course charity always has to pull on your heart strings, but the reason why I did the Telethon way back when is that I thought it would subconsciously say that disabled people can give charity as well as receive it. But after I did it, I was accosted in a lft by the wonderful Vicky Waddington who explained why the charity model of disability - which paints us as victims in need of help - has no positive effects for us disabled types. After talking to her I understood that charity is just plain wrong, especially this kind of jumbo media event. Sure it could be vehicle for real change, with money being raised to pay for the changes we really need in society. Better access, better understanding and more equality. But those are not the kind of things that pull of those heart strings and purse strings. The point of a telethon event is raising money, so that is the sole point of the program. The aim is to raise more money than the last event. That's how you measure the success of it.

Now I could write on this subject for pages, but as I said I'm too damn busy. So I hope that all of you that did watch Children in Need/Stand Up To Cancer/Red Nose Day felt a little uncomfortable during the hours of "fun". Just imagine if it was people like you who were targeted as being deserving of charity and pity. Not a great feeling.

Let's take the item on the One Show that Ade Adepitan presented on dancing for disabled kids. It claimed that giving money to a special dance class for disabled children is a good thing. But if you think about it, wouldn't it be better if the kids that went to this special class could just go to a mainstream dance class with other non-disabled kids and learn to dance? A totally mixed class where everyone was equal. I have just interviewed the fantastic disabled dancer Laura Jones for a Disability Now article, who was the first disabled person to study dance at college. She helped choreograph the Paralympic Opening and Closing Ceremonies, and is a superb dancer. Surely that is the way to go? Not only is it inclusive but it will mean that more disabled people will become professional dancers. But even if they don't, and they just do dance for the love of dance, they will have an experience of being equal to the other members of the class. Not special, different... and in some way less.

To me it's the same for all of the various good causes. To raise money they need to focus on the difference, yet the only way to make the world better is to make everyone see that we are all the same. Whether we're disabled, poor, old, young, or whatever, we are all human. So we all deserve the same chances and until charity aims to do that, it will divide us all. I mean even the title of Children In Need spells out difference.

Anyway, that's enough for now. All I ask is that you think about it.

Busy, Busy, Busy!!!!

Hi Everyone.

Sorry for going quiet recently. I'm crazy busy at the minute, getting ready for the Paralympic Opening Ceremonies. I can't say any more, as we all want to keep the secret, but it's going to be huge. I'm also writing a series of pieces for Time Out about the games, so watch out for those.

On top of that I have an article on the rehearsals in the next issue of Disability Now.

Anyway, the picture above is some of the great people I have met and am working with. So make sure you are glued to Channel 4 on August 29th.

I'm swatting up on Wheelchair Rugby, as I will be presenting the in-game coverage at the arena. So if you've got tickets to see this high octane sport, see you there. Can't wait.

Normal service will be resumed once the games end.

Mik

Sex: Are We Really So Different?

I read the article "Sex: some facts of life" by Kirsty Liddiard in the April issue of Disability Now with great interest. I once trained to go into social work, with the aim of working with newly disabled people. I also recently decided to change my studies from a Psychology degree (to one in English and Creative Writing) after finding that the medical model is still being taught as the only way of describing disabled people's identity. It was really encouraging to see someone examining the issue of disability and sexuality from an academic approach. With Kirsty being a trained sociologist and disabled herself, I hoped that the article would finally confront the issues disabled people face around sexuality and relationships in a rounded manner. However the piece actually seemed to blame any problems disabled people might have on disability itself and how society sees the disabled, without any broader conversation.

Now don't get me wrong, I have an experience all of the issues covered in the article, from abusive relationships through poor body image to a lack of confidence over a change in the way my body functions sexually, and fully appreciate how each one can deeply effect someone's identity and ability to form successful relationships. My own journey to the place I am at now, in a very successful and happy relationship with someone who loves me the way I love them, was a long and painful one. I also appreciate that the way I feel about my disability has had a serious impact on that journey, and is still key to my psyche and effects how I really feel about my own attractiveness. But I do not agree that these issues are something that disabled people face alone.

 

A key factor to being able to begin the task of looking for love is self confidence, and this is an area that effects everyone in our society. We only need to consider the huge growth in the number of people undergoing cosmetic surgery to understand that issues of confidence have an impact on members of society that we disabled people might see as examples of "physical perfection", and that this is not what they see when they look in the mirror. Most sociologists and psychologists agree that low confidence around body image is a growing problem throughout our society, effecting both sexes. However much we might see our issues with body image as being more valid or obvious, the truth is the emotional and psychological impact of low self confidence is the same for anyone who suffers from it.

This lack of confidence can lead on to forming unhealthy relationships, which the article also covered. But yet again the stories of every one of the people interviewed could just as easily be those of non disabled people. I spent many years of my 20's in a relationship with someone who abused me, both verbally and physically, and they went on to repeat this behaviour with their next partner, who has not disabled. I used to feel that it was my disability that caused this person to act the way they did, and this led me to stay in an unhappy relationship so long, but I now understand that is incorrect. While my lack of confidence was tied to my disability, it was the confidence issue itself that made me stay. The same goes for anyone stuck in an abusive relationship.

A deeper factor in disabled people's lack of confidence can be due to a difference in the way our sexuality functions or our inability to have sex in a "normal" manner. While I was disabled from birth, my sexual function changed when my spine collapsed at the age of 15. This led me to spend most of my adult life wrecked with self doubt about my ability to satisfy my partners sexually and to what would happen if anyone found out about what did and didn't work in the trouser department. So I spent years lying to everyone I knew and praying any ex's would keep my secret. When I met my wife, being with her gave me the confidence to "come out" about the way my body worked. When I did so in the most public manner possible (i.e. on TV) I found that nearly everyone of my male friends sidled up to me at some point and admitted that they to suffered from serious sexual dysfunction issues. The fact that Viagra is now taken as a recreational drug demonstrates how big this problem is for all of male society. I do not feel informed enough to discuss the issues faced by those people who might need assistance when having sex, but can see how that might effect not only how you feel about yourself but how you approach sex entirely. I do know that it is normally these people who are expected to use prostitutes if they ever want to have sex.

Thankfully the article did finally dispel the idea that sex with a prostitute is a solution for disabled people, especially men, who are seeking sexual experience. There are many people who campaign for legalising prostitution who use disabled people as an excuse for their argument, yet it should be obvious that it will be an empty experience whether you are disabled or not. For anyone lacking self confidence, visiting a prostitute can only reinforce these issues. No one will feel better about themselves if they feel the only way they can experience love or sex is to pay for it. But there is more than one way of paying for it. I once was in a relationship with someone who expected me to pay their rent, buy their clothes and cover all costs when we went out and seemed to think that was fine as they gave me sex. It made me feel cheap and made me mistrust prospective partners too. If I hadn't met my wife I don't know what kind of barsteward I might have become. I also know from those non disabled friends who have visited a lady of the night that they have exactly the same experience of emptiness afterwards.

We now come to the issue of fetishism. I spent most of the 90's partying on the fetish scene and will admit I found the acceptance and tolerance I was met with really liberating. I even spent a short time going out with someone who admitted they "dug the wheelchair", if you get what I mean. I left the whole world because as it became more accepted by the wider society, the ignorance of the wider society bled into the attitude this underground scene. Once people understood that a disabled person wouldn't be in a fetish club if they couldn't have sex, what ever type of sex that might be, but I eventually found myself explaining on a nightly basis that my wife and I could have sexual relationship (on a nightly basis if we wanted).

Just because I spent time in the world of fetishists, that doesn't mean I have no understanding of why so many disabled people find the whole thing offensive. No one likes the stereotype that the only people who might want to have sex with them could be called perverts. Back when I was part of the London fetish scene I filmed an item for Channel 4's "Freak Show" series that I hoped would explore the subject of disability and fetishism in a serious yet light hearted way. Instead it was edited to imply that my wife was only with me because I was disabled, so I know how hurtful this idea can be. It especially upset my wife, as she had actually said that she loved all of me and my disability was part of what made me, me. Never trust a TV producer and their editor. The crazy thing is I admit that I chatted up my now wife partly as I saw she had a scar all down her right arm. I think scars are really beautiful and the way she paraded it so openly said something great about what kind of person she was. But does that make me a devotee of her and her scar, or is it just another facet of how perfect she really is?

All of this is OK and it is only my own opinion, but does it help us find a solution to love, sex and relationships? Well I hope it does. If we as disabled people realise that all of the issues we face around the subject are the same as those faced by everyone, whatever the cause, then we should hopefully feel able to enter the world of love on a more level playing field. Yes we do have our own issues to face, but the way they effect us emotionally is not so different to the way the rest of society's issues effect them. All I know for sure is many of my non disabled friends are desperately looking for the same thing we are all chasing, a happy and loving relationship and they wouldn't care if that was with someone who disabled or not. At the root of this whole subject is the fact that self doubt is part of the human condition and how we cope with it makes us who we are. So let's stop seeing disability as a barrier to love, and instead embrace it as part of what will make us a real catch.

Don't read this... read that

I did plan to write a blog about the various proposed changes in what assistance disabled people get via benefits and care packages, but I actually feel that everyone would do better to visit the Disability Now website, or read the current issue of the magazine. The team there have put together a series of fantastic articles that really explain the planned changes.

Disability Now

I must congratulate Ian Macrae and his team at DN for their superb work helping anyone who might be effected by the proposals to understand what is ahead. Well done.