Today two teenage boys have pleaded guilty of killing blind 85 year old Paula Castle and this has been widely reported in the press. This is such a sad story but I feel it lifts a lid on an underlying issue with our society at the minute. These two young boys felt nothing as they violently attacked this elderly person, who was obviously very frail and disabled, and even repeated their crime on the day that Mrs. Castle passed away, this time against 75 year old Rose Mohamed. But why is it that there are young people out there who have so little consideration for those who are weak and vulnerable? Many people, especially in the press who are so outraged by this kind of crime, will say it shows that society is falling apart and that we need to crack down on these types of criminals. While I do agree that tough sentencing is required for this kind of crime, I think it is vital to place some of the blame at the feet of some sections of the press who have complied with the current government's campaign to make scapegoats out those members of our society who need assistance and support.
As a disabled person I have also been a target for young people who saw me as a soft touch. My wife and I were targeted by a group of youths when I lived in West London, which went on for some years, escalating in severity during this time and ending with me having to flee my home in fear of my life after a threat to burn my flat down. The police, while being supportive, insisted they could do nothing until something actually happened, but not wanting to wait until the flames licked around my tyres or the knife stuck out of my or my wife's ribs, I felt that running away was the best course of action. So I gave up my fully adapted two bed flat that had been my home for years, and the friends I had in the area, and hid in a one bed un-adapted flat in my wife's home town of Camden. It took us years to rebuild our lives, but at least we both got away alive. We had to live apart for two years after we were married as neither of our flats were suitable for us to live together in, but that is another story I feel.
Throughout this ordeal I was told by my youthful tormentors that it was "all right for me as I got loads of benefits off the state", that I was "a drain on society" and that "people like me should be put down". Now where would these young people get these attitudes from? Well obviously their parents, but they got them from the media, as did their charming kids. For too long now the old and disabled have been portrayed as an expense that our country can no longer afford, and that these groups get stuff that everyone else doesn't get, and for free. If you are a poor unemployed teenager it is easy to start resenting those who society seems to be upset about due to the cost of having them as members. So the old and disabled become valid targets.
Once peer pressure alone would have stopped a teen mugging someone who was 85. I know when I was in my early teens Punk was the big thing, and while we all sauntered around in our bondage trousers with our spikey hair and our safety pins we would never have dreamed of mugging some one elderly or disabled. Not only would it have occurred to us, but even if it did our mates would have kicked the poo out of us if we dared to suggested it. But that was because even though we wanted to shock our elders and betters we still considered them as vaild members of society. We looked at those in power as the ones to blame for our problems, not the old and disabled. However much we were hated by the press and public we still had respect for our elders, even though it might not have shown.
But if you continuously hold those who are least able to defend themselves up as part of the reason why our economy is so bad, as a cost we cannot afford and as people who would be better off dead then you end up in the position we are in now. With hate crime against the disabled and elderly going up horrendously, and an attitude of jealousy and distrust becoming more and more pervasive in our society. While this is a truly tragic case, and the boys who did this crime must be punished, I do hope the press takes a moment to reflect on how their reporting and the language they use may when they discuss groups like the elderly and disabled may have played a part in creating a world where this kind of crime happens.
Showing posts with label Disability. Show all posts
Showing posts with label Disability. Show all posts
Wednesday, 10 April 2013
Paying the price for being made scapegoats.
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Monday, 1 April 2013
Oh no not again! - Jonathon Creek loses it's magic
Both Diane and myself are big Jonathon Creek fans and so we were most happy to see that he was about to make a come back tonight. We both sat back ready to spend an evening looking out for clues with the BBC's floppy haired magical detective. But it soon became clear that alongside the mystery that we were meant to unravel there was another one that might have been missed by most viewers, but one with a more obvious answer.
You see as soon as Rik Mayall wheeled into view, my heart dropped and the game was afoot. "But what is the mystery you speak of Mik?" I hear you ask. Well it why has the BBC's casting department seen nothing wrong with getting a non-disabled actor to "crip up" and play disabled, yet again. I began to watch closely, trying to seek out those hard to spot clues that might give me the answer. As the show rolled along I started to wonder if the reason was that at any minute Rik was going to jump up and walk. Oh yes, that must be it! HE was the one who was to blame for the shenanigans that Jonathon was trying to make sense of. That must be why the BBC and the JC production team had made such a faux pas. It was going to be the hidden twist and the wheelchair was all a ruse to throw the viewers off the fact that Rik was playing the villain. The minutes ticked by and I became absolutely sure. It just must be the answer... but no, I was wrong. As the credits began to be squashed to one side by information of what was coming next across the Beeb, I sadly knew that I had just sat through another example of just how out of touch the media still is when it comes to disability.
If we ignore that ridiculous idea that there exists a I-Pad clamp that can be used as a weapon by a man who is meant to be paralysed in such a way that he can only move one finger (I won't say too much in case you missed it and want to enjoy poor writing at it's best), at no point during Rik Mayall's performance did anything happen that made it essential that a non-disabled actor was cast to play the role, either through the portrayal or script. In fact it was only that he was a returning character that apparently had been shot and paralysed while JC was off our screens that could be said to be why it had to be Rik.
But the big mystery that this show needs us to solve is why not introduce a new character who was really disabled, both in the drama and in real life? I know of so many truly talented disabled actors who could have nailed this role, including little old me. Not only would have brought a reality to the role, but it would have shown that the BBC is really committed to the idea of Integrated Casting, which all the industry says it is signed up to.
Integrated casting is where disabled actors may be cast to play characters that are not written as disabled and so their disability will not be mentioned in the piece. Now in a way casting a non-disabled actor to play disabled could be described as integrated casting, but in truth it is not. This form of casting is designed to try to mirror the real world, and to get more disabled talent onto our screens. But it was also meant to be the next step that the media took after ensuring that only disabled actors played disabled roles.
In fact casting mistakes like tonight's just demonstrates that when it comes to disability the BBC is still in the place it was back in the 60's and 70's with the portrayal of Black and other ethnic minorities. I shall just say "The Black and White Minstrel Show". It is just as offensive to most disabled people to see yet another job that should gone to one of us going to someone not disabled, no matter if they are a "name" of not. How will there ever be a big name disabled actor if we never get the roles? How can we ever get to prove ourselves as actors if we never get the roles? How can we even think of going into the industry if after so long campaigning to make the people who cast TV drama to cast disabled people to play disabled people we still never get the roles?
There is no excuse for tonight's casting. Whatever those involved say it was just plain wrong. It belittled the show, it belittled the viewers and sadly it made me think considerably less of Rik Mayall. As someone who I have worked with in the past, on the show Wham Bam Strawberry Jam; also for the BBC, I would have hoped that he might see that taking the part was wrong. Even if he wasn't fully versed in disability politics surely it must feel wrong, or at least weird, to play disabled?
In my heart I would hope that all professional actors would see it was wrong to play disabled but no. It's still seen as fine and might even win them an award or two. So this is a plea to all my fellow members of Equity, the actors union. Please stop taking these roles. If you stop, then the casting directors will have to cast the talented professional disabled actors out there and you will have played a part in making a real change in our society. You will have helped to create a new type of image of disabled people. One that shows we can work, and work in a professional manner, as well as ensuring that when we do play a role we can work with the writers and directors to create a character that is realistic and true to the experience of all the disabled people viewing.
Come on BBC, and every other production company out there, no more. Make tonight's Jonathon Creek go down in history as it's the last time you do this. From now on, if the role written is for a disabled character then only cast a disabled actor.
You see as soon as Rik Mayall wheeled into view, my heart dropped and the game was afoot. "But what is the mystery you speak of Mik?" I hear you ask. Well it why has the BBC's casting department seen nothing wrong with getting a non-disabled actor to "crip up" and play disabled, yet again. I began to watch closely, trying to seek out those hard to spot clues that might give me the answer. As the show rolled along I started to wonder if the reason was that at any minute Rik was going to jump up and walk. Oh yes, that must be it! HE was the one who was to blame for the shenanigans that Jonathon was trying to make sense of. That must be why the BBC and the JC production team had made such a faux pas. It was going to be the hidden twist and the wheelchair was all a ruse to throw the viewers off the fact that Rik was playing the villain. The minutes ticked by and I became absolutely sure. It just must be the answer... but no, I was wrong. As the credits began to be squashed to one side by information of what was coming next across the Beeb, I sadly knew that I had just sat through another example of just how out of touch the media still is when it comes to disability.
If we ignore that ridiculous idea that there exists a I-Pad clamp that can be used as a weapon by a man who is meant to be paralysed in such a way that he can only move one finger (I won't say too much in case you missed it and want to enjoy poor writing at it's best), at no point during Rik Mayall's performance did anything happen that made it essential that a non-disabled actor was cast to play the role, either through the portrayal or script. In fact it was only that he was a returning character that apparently had been shot and paralysed while JC was off our screens that could be said to be why it had to be Rik.
But the big mystery that this show needs us to solve is why not introduce a new character who was really disabled, both in the drama and in real life? I know of so many truly talented disabled actors who could have nailed this role, including little old me. Not only would have brought a reality to the role, but it would have shown that the BBC is really committed to the idea of Integrated Casting, which all the industry says it is signed up to.
Integrated casting is where disabled actors may be cast to play characters that are not written as disabled and so their disability will not be mentioned in the piece. Now in a way casting a non-disabled actor to play disabled could be described as integrated casting, but in truth it is not. This form of casting is designed to try to mirror the real world, and to get more disabled talent onto our screens. But it was also meant to be the next step that the media took after ensuring that only disabled actors played disabled roles.
In fact casting mistakes like tonight's just demonstrates that when it comes to disability the BBC is still in the place it was back in the 60's and 70's with the portrayal of Black and other ethnic minorities. I shall just say "The Black and White Minstrel Show". It is just as offensive to most disabled people to see yet another job that should gone to one of us going to someone not disabled, no matter if they are a "name" of not. How will there ever be a big name disabled actor if we never get the roles? How can we ever get to prove ourselves as actors if we never get the roles? How can we even think of going into the industry if after so long campaigning to make the people who cast TV drama to cast disabled people to play disabled people we still never get the roles?
There is no excuse for tonight's casting. Whatever those involved say it was just plain wrong. It belittled the show, it belittled the viewers and sadly it made me think considerably less of Rik Mayall. As someone who I have worked with in the past, on the show Wham Bam Strawberry Jam; also for the BBC, I would have hoped that he might see that taking the part was wrong. Even if he wasn't fully versed in disability politics surely it must feel wrong, or at least weird, to play disabled?
In my heart I would hope that all professional actors would see it was wrong to play disabled but no. It's still seen as fine and might even win them an award or two. So this is a plea to all my fellow members of Equity, the actors union. Please stop taking these roles. If you stop, then the casting directors will have to cast the talented professional disabled actors out there and you will have played a part in making a real change in our society. You will have helped to create a new type of image of disabled people. One that shows we can work, and work in a professional manner, as well as ensuring that when we do play a role we can work with the writers and directors to create a character that is realistic and true to the experience of all the disabled people viewing.
Come on BBC, and every other production company out there, no more. Make tonight's Jonathon Creek go down in history as it's the last time you do this. From now on, if the role written is for a disabled character then only cast a disabled actor.
Labels:
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Thursday, 31 January 2013
Disability and Sex.... it's not just possible, it can be amazingly amazing!!!!
Anyone who has been reading my blogs recently, as well as watching This Morning, listening to the radio or reading various newspapers who have interviewed me will know that I have strong feelings about the subject of disability and sex. But this isn't a new thing, I began my media career working as a sex-pert on two Channel 4 Yoof shows, and have been working to champion the right for disabled people to have a sex life ever since. However, I want disabled people to treated just like the rest of society so I am dead against this current push to create special crip friendly brothels and for disabled people to get free visits to sex workers on the state. But I don't want to only be negative on this subject and so I have written a column in this issue of Disability Now giving my tips on chatting people up, under the title of "Mik's Rough Guide To Pulling". It's a humorous piece, written with my tongue firmly stuck in my check, but all the tips have worked for me. In fact I would go so far as to say that these tips have allowed me to be the sexually confident person I am today.
On top of these tips, I feel this is the time to put online an article I had published in a woman's magazine called Scarlet (yes I got the job by ringing them up and saying "I must write for you... Scarlet in Scarlet" and they went for it). The piece outlines some of the techniques that I have used during sexual confidence workshops with people with spinal injury, but in the article I have applied the tips to the wider community. Yes I am so arogant that I decided to give sex advice to everyone, disabled or not. But shock horror, it was really well received and was syndicated worldwide. You see I have always believed that the wider society could learn a thing or two about improving their sex life from disabled people like me, and the reaction to this article proved me right. But more importantly, it is essential for disabled people to know that not only is sex possible for them, no matter what their impairment, but it can be so good that it is better than the sex that the majority of non-disabled people have.
So whoever you are, and whether you are disabled or not take a look and see what you think. It's very honest and open, but I have always felt that this is a topic that is so important that if I want to ensure a change in the way the world thinks about sexuality and sex and disability then I can't only tell half the truth.
Right here goes....
On top of these tips, I feel this is the time to put online an article I had published in a woman's magazine called Scarlet (yes I got the job by ringing them up and saying "I must write for you... Scarlet in Scarlet" and they went for it). The piece outlines some of the techniques that I have used during sexual confidence workshops with people with spinal injury, but in the article I have applied the tips to the wider community. Yes I am so arogant that I decided to give sex advice to everyone, disabled or not. But shock horror, it was really well received and was syndicated worldwide. You see I have always believed that the wider society could learn a thing or two about improving their sex life from disabled people like me, and the reaction to this article proved me right. But more importantly, it is essential for disabled people to know that not only is sex possible for them, no matter what their impairment, but it can be so good that it is better than the sex that the majority of non-disabled people have.
So whoever you are, and whether you are disabled or not take a look and see what you think. It's very honest and open, but I have always felt that this is a topic that is so important that if I want to ensure a change in the way the world thinks about sexuality and sex and disability then I can't only tell half the truth.
Right here goes....
WHEELIE SEXY
SEXY
TIPS… FROM A SEXY CRIP!?! by Mik Scarlet
Let’s
face it we don’t live in a society that thinks of disability as
“sexy”. Most able-bodied people think that coming to a disability
as an end to sexiness, and in a way it is. When I found myself facing
a life in a wheelchair after my spine collapsed when I was 16, I
could not see how I was going to form sexual relationships. Due to
nerve damage I was not only left with legs that didn’t work
any more, but I also had to face my future with sexy bits that while
they still had full feeling (which was lucky I admit) had no motor
function. Put simply I was left looking forward to a future where Mr.
Wobbly stayed wobbly all the time.
I
considered trying to forge relationships with men, but found being
very heterosexual got in the way of that. (I still have no idea how
you girls put up with stubble on a bloke’s face, and I won’t even
mention the taste of a cock….urk!) So with a heavy heart I got used
to the idea that I was to face a future alone.
You
see I had brought into the myth that sex is all about erections and
penetration. Luckily for me, this was back in the early 80’s.
Thanks to the whole New Romantic fashion (of which I was a HUGE fan)
it was a time when young people questioned all of the sexual
stereotypes. Most of my friends turned out to be Gay or Lesbian and
through their friendships I learned the truth about sex.
The
main reason for sex now we have evolved beyond shagging to reproduce
is pleasure. Whether it’s in a loving relationship or between ships
that pass in the night, great sex should leave you sweaty, knackered,
fulfilled and very happy. All of my Lesbian friends made me an
Honorary Lesbian once they learned I could have no part in the
penetrative act (it was a different time folks – Lesbianism was
very political life choice, and all penetration was considered rape).
With their help I began to see myself as a sexual being, and even
ended going out with one of them for two years.
I
also read every sex manual I could lay my hands on. In fact I read
all manner of books that I thought might be useful if I was going to
be able to please any future partners. I even went as far as to read
a S.S. torture manual for the WW2 just in case I ever ended up naked
with a masochist. (On retrospect it hasn’t ever helped my sex life
but it did completely freak me out at the time)
Well
now you know why I think I am in a position to give you, lovely
reader advice on sex. I promise you if you try out some of these
tips, you will end up having a great time…
*Tip
1 – Open you mind (part1)
The
major sex organ that we posses is our minds. Fantasy and imagination
can make sex so much more rewarding. So forget any hang-ups you might
have, ignore any baggage you might have from up bringing (either from
religion, parents or bad experience) and most off all never feel
guilty.
*Tip
2 – You’re only making it harder on yourself!
Penetration
can be a prison for sexuality. Yes it can be fantastic, but getting
too hung up on the “old in-out” can lead to a very unfulfilling
sex life. While some women can only reach orgasm through being filled
up, most find themselves getting there thanks to the most perfect
organ, the Clitoris. But every girl’s “Love Button” is
different. Some like gentle stimulation, some enjoy a more aggressive
direct approach and others change their tastes like the wind changes
direction. There is no right way to give the Clit the attention it
needs and deserves, so experimentation is the only way forward.
When
“giving” to your partner use your imagination and try everything.
Watch the response. If it seems favourable, change what you are doing
slightly and see how the response changes. More favourable – carry
on, less favourable – try some thing else or go back to what you
were doing before.
When
“receiving” please, please, please talk to your partner. Tell
them what you like, and if you don’t know let them experiment and
say “Oh Yes!” when they are getting it right and “Oh No!”
when they aren’t (but be gentle with them - nothing ruins your
confidence like a partner knocking your technique – you always get
more bees with honey than with vinegar). Try making it part of your
role playing - being “The Boss” or playing “The Virgin”. If
it works don’t knock it!
*Tip
3 – Open your mind (part2)
Role-playing
and fantasy brings me to my best tip. I call it “Hands Free
Masturbation”. In short this is a tip that once you’ve worked out
how to do it will make sex a whole new ball game (if you’ll excuse
the pun).
To
learn H.F.M. you need to make yourself a gap in your day, preferably
just before going to sleep. Lay yourself down, and basically think
the sexiest, dirtiest thoughts you can imagine. It doesn’t matter
what you think of, as long as it hits your spot. Remember to forget
guilt, and just go wild. Now hopefully this will get you turned on
nicely. When you feel your body starting to respond to what’s
happening in your head,
DON’T
TOUCH YOURSELF!
Instead
make your fantasies go even wilder. Really let yourself go. At the
same time start focusing on the “nice” feelings that will
hopefully be getting more and more intense as you fantasise. For the
first few times you might need to touch yourself, but only give in if
you really have to. If you keep resisting the urge, you will find
yourself orgasming just through the power of your imagination.
This
fantastic skill can help in many ways. It can be used to ensure you
cum together, to make any sex that extra bit special and lets you
wank any time, anywhere.
*Tip
4 – The Real Head Fuck
The best part of learning H.F.M. is that you can
then use the technique to make other parts of your body as responsive
as your genitals. It is something I teach to disabled people who have
lost sensation in their sexy bits. It means they can start to really
enjoy sex on an equal footing with their partners. What it means to
you able-bodied shaggers is the ability to make any part of your body
a “Love Button”.
All you have to do is when you are trying a bit of
H.F.M. move your focus from your groin (where the “nice” feelings
tend to start) to another part of your body. I would advise you to
start with your nipples. They are already an erogenous zone, and so
it easier to focus the sexy feeling to them. But any part of your
body that you enjoy having touched will do. Try to push yourself over
the edge without focusing on your groin. If you need to touch the
part of your body you are focusing on, just to make the sensation
more intense.
Now you can go wild and cover your body in “Love
Buttons”. I even know of a guy who was a tetraplegic (broke his
neck – think of Christopher Reeve) who turned the end of his nose
into his sex organs. Just imagine how much it made having a cold.
*Tip 5 – Never say Never
All of my other tips involve some effort on your
part. I have used them all to great effect, and I have taught them to
others to equal effect. However the best thing that I have learned on
my way to becoming the sexually confident Crip I am today is “Never
be afraid to try something”. In fact it’s more than that. In the
words of Diane, my fiancĂ© and the love of my life, “If you
try something and you don’t like it, try it again just to make
sure!”
(end) So, there you go kind reader. Give my tips a
go, and see what happens. I mean what’s the worst thing that can
happen?
Oh and one more thing before I go. If you ever
want to try a bit of bondage, try using a wheelchair. They are
covered in fixing points, and it means you can wheel your “captive”
all over the house. Not that I’d know of course… Tee hee!!!!!
©Mik Scarlet 2005
Well I think that is enough on sex for now. I hope that my arguments around this attitude that disabled people can only experience sex if they pay for it, and my advice, both in my DN article and the tips above, go some way to changing the way you, dear reader, think about sex. If nothing else, I hope you give some of my tips a try. Might make for a fun night.
* * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * *
If any groups or disabled people's organisations reading this would like to me to run a workshop around sexual confidence and disability, please contact me using the e-mail address on my website - www.mikscarlet.co.uk
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Monday, 21 January 2013
Has the everyone just started taking crazy pills?
Just when I thought the topic of disability and sex couldn't get more media focus, something else catches their attention. Alongside the proposal from Becky Adams to open a special "Disabled Only" brothel that I explored in my last blog there is now the story of Chris Fulton who is looking for a solicitor who will help him fight for vouchers from the NHS to pay for disabled people to visit sex workers on the state. I can't even begin to explain why this is a non-started of an idea. But I will try...
Disabled people who have impairments that effect their mobility or their ability to carry out daily activities easily already get payments through the DLA, which is soon to change too the PIP payments. It's our choice how we use those payments, so if a disabled recipient feels that they need to visit a sex worker they can use some of that money for that purpose. To claim that sex is a human right opens up a can of worms that might lead to many other members of our society demanding that they also have the right to visit sex workers of the NHS. I'm sure this idea will drive those people who believe the propaganda that disabled people are already getting loads of free stuff from the state into a rage. A visit to the Daily Mail online will prove me right I feel.
Of course at the minute disabled people are facing a mirriad of cuts and changes in how their lives are run. One of the biggest is the closure of the Independent Living Fund. The fund used to provide funding to cover the costs of paying for Personal Assistants, who allowed people who need help with dressing, washing and eating to living independently. These costs are now going to expected to be covered by local authorities, but there is no legal expectation for them to do so. This means that many disabled people are facing the prospect of a future in residential homes, after living their lives in their own homes totally independent. Surely this is the kind of thing that people like Chris should be campaigning for? How can you use your hooker vouchers if you can't get dressed, washed or fed?
But even if you ignore that bigger issues, how would this work? Who says who is so disabled that they are entitled to use the voucher scheme? Would the government get in Gok Wan to cast his eye over the claimants to decide who isn't sexy enough to get laid? Or even worse, would Atos being hired to run Sex Capability Assessments? Would you need to be assessed by a panel of Atos experts before you could claim for a freebie sex sessions?
Then would those pesky fraudsters start trying to get the vouchers even though they weren't entitled to them? Would non-disabled people be greasing down their hair and acting all disabled in the attempt to get some free sex? Or would sexy cripples try to down play the gorgeousness as they feel they should also be entitled to some extra sex? Maybe the BBC's Saints and Scroungers could run a sex special exposing those terrible people who are really able to get themselves sex but who have pretended to be unshagable to defraud the state.
In all seriousness, is state funded sex the real answer to the way disabled people are considered by society? I would hope that we would campaign to change the way we were thought of by the wider world. More disabled people in the media, more opportunities to find work and accessible housing and an end to the targeting of the benefits that allow disabled people to live an independent life would all be campaigns that might help a little. Now it might seem a bit like a "Giz a job" idea, but I really feel that more strong, confident and attractive disabled people in the media would help loads. It would show the non-disabled world that their stereotype of disability is wrong and create role models for disabled people. I know that I have met loads of disabled people who have told me that seeing me on the TV back in the 90's gave them the confidence to dress up, go out and have fun. Whether we like it or not, that is how most people meet a partner. I must also admit that I used to get a lot of steamy fan mail when I was a kids TV presenter. All those mums watching TV with their kids had no problems with the idea of sex with a wheelchair user that's for sure.
Disabled people want equality in choice and experience. Expecting the state to pay for us to have sex is so far away from this dream it hurts. On top of that it damages the way society sees us further. I want the wider society to start seeing disabled people are great protective partners and not tragic charity cases that all have to pay to get their bits felt. So come on folks, let's stop shouting about such silly ideas.
Disabled people who have impairments that effect their mobility or their ability to carry out daily activities easily already get payments through the DLA, which is soon to change too the PIP payments. It's our choice how we use those payments, so if a disabled recipient feels that they need to visit a sex worker they can use some of that money for that purpose. To claim that sex is a human right opens up a can of worms that might lead to many other members of our society demanding that they also have the right to visit sex workers of the NHS. I'm sure this idea will drive those people who believe the propaganda that disabled people are already getting loads of free stuff from the state into a rage. A visit to the Daily Mail online will prove me right I feel.
Of course at the minute disabled people are facing a mirriad of cuts and changes in how their lives are run. One of the biggest is the closure of the Independent Living Fund. The fund used to provide funding to cover the costs of paying for Personal Assistants, who allowed people who need help with dressing, washing and eating to living independently. These costs are now going to expected to be covered by local authorities, but there is no legal expectation for them to do so. This means that many disabled people are facing the prospect of a future in residential homes, after living their lives in their own homes totally independent. Surely this is the kind of thing that people like Chris should be campaigning for? How can you use your hooker vouchers if you can't get dressed, washed or fed?
But even if you ignore that bigger issues, how would this work? Who says who is so disabled that they are entitled to use the voucher scheme? Would the government get in Gok Wan to cast his eye over the claimants to decide who isn't sexy enough to get laid? Or even worse, would Atos being hired to run Sex Capability Assessments? Would you need to be assessed by a panel of Atos experts before you could claim for a freebie sex sessions?
Then would those pesky fraudsters start trying to get the vouchers even though they weren't entitled to them? Would non-disabled people be greasing down their hair and acting all disabled in the attempt to get some free sex? Or would sexy cripples try to down play the gorgeousness as they feel they should also be entitled to some extra sex? Maybe the BBC's Saints and Scroungers could run a sex special exposing those terrible people who are really able to get themselves sex but who have pretended to be unshagable to defraud the state.
In all seriousness, is state funded sex the real answer to the way disabled people are considered by society? I would hope that we would campaign to change the way we were thought of by the wider world. More disabled people in the media, more opportunities to find work and accessible housing and an end to the targeting of the benefits that allow disabled people to live an independent life would all be campaigns that might help a little. Now it might seem a bit like a "Giz a job" idea, but I really feel that more strong, confident and attractive disabled people in the media would help loads. It would show the non-disabled world that their stereotype of disability is wrong and create role models for disabled people. I know that I have met loads of disabled people who have told me that seeing me on the TV back in the 90's gave them the confidence to dress up, go out and have fun. Whether we like it or not, that is how most people meet a partner. I must also admit that I used to get a lot of steamy fan mail when I was a kids TV presenter. All those mums watching TV with their kids had no problems with the idea of sex with a wheelchair user that's for sure.
Disabled people want equality in choice and experience. Expecting the state to pay for us to have sex is so far away from this dream it hurts. On top of that it damages the way society sees us further. I want the wider society to start seeing disabled people are great protective partners and not tragic charity cases that all have to pay to get their bits felt. So come on folks, let's stop shouting about such silly ideas.
Labels:
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Thursday, 10 January 2013
Brothels for the Disabled? No Thanks!
Yesterday I did a radio phone in on BBC 3 Counties Breakfast Show on the subject of a proposed brothel that will specialise in providing a service for disabled customers. Yes, a brothel for cripples. Many of you will know that I do a lot of campaigning and work around the topic of sexuality and disability and so might imagine that I would be in favour of such an idea. However this could not be further from the truth. While I got a brief chance to air my views on the radio, I think it is really important to explain fully why I feel it could be so damaging for all of us, not just disabled people. It breaks down to three key reasons.
The first is the idea that disabled people have a greater need for the services of prostitutes. This is an attitude that runs throughout our society, yet the proof just isn't there. While I know and have met some disabled people, well disabled men, who have paid for sex, most have not. They have gone out in to the world and formed sexual relationships in the "normal" way. Ones that spanned from casual flings to long term love and flowers jobs. Not just those disabled people who could be said to have the sexier disabilities, like Paraplegics or Amputees, but people with all manner of impairments. People who have little or no ability to speak and who need 24 hour personal assistance who have had or who are in loving relationships. Yet time and time again, when the media focuses on the subject of sex and disability the story we mainly see revolves around a disabled person seeking paid sex. More than that, the prostitution industry uses this attitude to attempt to legitimise what they do and to further their campaign to legalise it.
The effect of this false belief that disabled people need the services of prostitutes more than anyone else is the second reason why I am opposed as it causes issues for the way society thinks about disability. It not only effects disabled people but everyone. For disabled people, it means they grow up in an atmosphere that makes them believe that they just aren't sexy or potential sexual partners and for the non-disabled community it plays a part in continuing the prejudice around disability. More than that, as all non-disabled people are just disabled people before an illness or injury, it means that if they acquire a disability part of the grieving process they will have to go through revolves around the loss of their sexual confidence. I know as even though I have been disabled since birth, I went through it when my impairment changed and started using a wheelchair at the age of 15. Even before then, when I one of the walking wounded, I was unsure that anyone would want to go out with me. But when my spine collapsed and I lost the ability to gain an erection, I was positive that my chances to form sexual relationships were over. Yet I soon found I could not have been more wrong. With much of the work I do with newly disabled people this fear around them no longer being able to have sex or form relationships is a massive part of the journey they go on as they learn to put their lives back together. Much of this feeling of asexuality stems from the focus on disabled people having this deep need to pay for sex, which most people really don't want do to. So of course you will get down about being newly disabled is you truly believe that the only way you will be able to have sex from now on is if you pay for it. Why would your partner want to stay with someone who is now that lacking in the sexy stakes? I also think that this attitude leads to the need that there is for paid sex. If you grow up or become disabled so assured that the only way you'll ever experience sex is to pay for it, then that is what you will do. Thus the need for this proposed service is fuelled by the attitude, so it becomes self fulfilling.
Lastly, the idea that there should be a special place for disabled people who do want to use the services of prostitute is also wrong. The law states that any new business should ensure that the goods or services that they provide should be accessible to disabled people, so any brothel that opens should be open to disabled people. Not just one specializing in cripple sex. You shouldn't have to travel to Milton Keynes, or where ever it might be sited, if you want a paid sex experience, but you should be able to pop down to your local knocking shop. Remember that currently brothels are illegal, so if the law is changed and they can be opened then all brothels will be new businesses. So to comply with the law every single one of them should be fully accessible. If they aren't you can sue them! Thus getting you get your paid sex for free... tee hee.
Now don't get me wrong, I am not arguing that disabled people should not visit prostitutes. I want disabled people to have the right to choose how they live their lives, so if you want to pay for it then fine. But I refuse to stay silent as yet again this option is held up and the only choice for disabled people. No disabled person is so unattractive that this is their only solution to their needs, and if that is how some people feel then we should all be fighting to do something about that. We should not be fighting to make a world where it's easier for disabled people to pay for sex as they feel they can get it no other way, we should be fighting for a world where disabled people are seen and see themselves as viable sexual partners. During my career I have made several programmes and written loads of articles on the subject of disability and sex, and have met with quiet a few disabled people who paid for sex. Almost all them have said that the experience eventually left them feeling empty and depressed as there it was only sex. At the end of the day what we all really want is an emotional bond, friendship and companionship. Sure orgasms are nice, but sex is always best in a loving relationship and why shouldn't we all have the chance at that?
I know I could be described as lucky when it comes to this subject. I am happily married, and have had a succession of beautiful girls in my life before I met "the one". I am definitely always being told how lucky I am as I come across as confident, and recently my good friend Julie Fernandez told me I was overtly sexual, which was a bit of a shock to me. You see I might appear to be all these things, but I have all the same hang ups and insecurities as everyone else. Don't forget I can't get a hard on so conventional sex is out for me. So I do understand why some disabled men might feel the need to pay for it. It's just that this subject is bigger than personal need. It says something about disability that I refuse to accept and do not want the society I live to take as truth. Whatever our impairment, disabled people can be and are sexy, sexual and superb potential partners. And focusing on the minority who bang on about paid sex being their only option hurts us all, and does nothing to further disabled people's lives.
A final issue I might raise is that if this special needs brothel (catchy name huh?) does open will all the people who work there be fully trained to work with disabled people, will it be able to find full liability insurance in case of something going wrong and will it have the ability to cater for all disabled people, spanning the full gamut of their physical and mental needs?
At the end of the day, if you want to visit a brothel you should be able to. I just feel that the idea of a special one for disabled people won't work, will do more harm than good to those how use it and does nothing to make the world a better place. It might sound a bit optimistic and utopian but I thought that is what campaigning is all about. I don't want to work in the real world, I want to work towards making that world better. Allowing this brothel to open just won't do that in any way.
The first is the idea that disabled people have a greater need for the services of prostitutes. This is an attitude that runs throughout our society, yet the proof just isn't there. While I know and have met some disabled people, well disabled men, who have paid for sex, most have not. They have gone out in to the world and formed sexual relationships in the "normal" way. Ones that spanned from casual flings to long term love and flowers jobs. Not just those disabled people who could be said to have the sexier disabilities, like Paraplegics or Amputees, but people with all manner of impairments. People who have little or no ability to speak and who need 24 hour personal assistance who have had or who are in loving relationships. Yet time and time again, when the media focuses on the subject of sex and disability the story we mainly see revolves around a disabled person seeking paid sex. More than that, the prostitution industry uses this attitude to attempt to legitimise what they do and to further their campaign to legalise it.
The effect of this false belief that disabled people need the services of prostitutes more than anyone else is the second reason why I am opposed as it causes issues for the way society thinks about disability. It not only effects disabled people but everyone. For disabled people, it means they grow up in an atmosphere that makes them believe that they just aren't sexy or potential sexual partners and for the non-disabled community it plays a part in continuing the prejudice around disability. More than that, as all non-disabled people are just disabled people before an illness or injury, it means that if they acquire a disability part of the grieving process they will have to go through revolves around the loss of their sexual confidence. I know as even though I have been disabled since birth, I went through it when my impairment changed and started using a wheelchair at the age of 15. Even before then, when I one of the walking wounded, I was unsure that anyone would want to go out with me. But when my spine collapsed and I lost the ability to gain an erection, I was positive that my chances to form sexual relationships were over. Yet I soon found I could not have been more wrong. With much of the work I do with newly disabled people this fear around them no longer being able to have sex or form relationships is a massive part of the journey they go on as they learn to put their lives back together. Much of this feeling of asexuality stems from the focus on disabled people having this deep need to pay for sex, which most people really don't want do to. So of course you will get down about being newly disabled is you truly believe that the only way you will be able to have sex from now on is if you pay for it. Why would your partner want to stay with someone who is now that lacking in the sexy stakes? I also think that this attitude leads to the need that there is for paid sex. If you grow up or become disabled so assured that the only way you'll ever experience sex is to pay for it, then that is what you will do. Thus the need for this proposed service is fuelled by the attitude, so it becomes self fulfilling.
Lastly, the idea that there should be a special place for disabled people who do want to use the services of prostitute is also wrong. The law states that any new business should ensure that the goods or services that they provide should be accessible to disabled people, so any brothel that opens should be open to disabled people. Not just one specializing in cripple sex. You shouldn't have to travel to Milton Keynes, or where ever it might be sited, if you want a paid sex experience, but you should be able to pop down to your local knocking shop. Remember that currently brothels are illegal, so if the law is changed and they can be opened then all brothels will be new businesses. So to comply with the law every single one of them should be fully accessible. If they aren't you can sue them! Thus getting you get your paid sex for free... tee hee.
Now don't get me wrong, I am not arguing that disabled people should not visit prostitutes. I want disabled people to have the right to choose how they live their lives, so if you want to pay for it then fine. But I refuse to stay silent as yet again this option is held up and the only choice for disabled people. No disabled person is so unattractive that this is their only solution to their needs, and if that is how some people feel then we should all be fighting to do something about that. We should not be fighting to make a world where it's easier for disabled people to pay for sex as they feel they can get it no other way, we should be fighting for a world where disabled people are seen and see themselves as viable sexual partners. During my career I have made several programmes and written loads of articles on the subject of disability and sex, and have met with quiet a few disabled people who paid for sex. Almost all them have said that the experience eventually left them feeling empty and depressed as there it was only sex. At the end of the day what we all really want is an emotional bond, friendship and companionship. Sure orgasms are nice, but sex is always best in a loving relationship and why shouldn't we all have the chance at that?
I know I could be described as lucky when it comes to this subject. I am happily married, and have had a succession of beautiful girls in my life before I met "the one". I am definitely always being told how lucky I am as I come across as confident, and recently my good friend Julie Fernandez told me I was overtly sexual, which was a bit of a shock to me. You see I might appear to be all these things, but I have all the same hang ups and insecurities as everyone else. Don't forget I can't get a hard on so conventional sex is out for me. So I do understand why some disabled men might feel the need to pay for it. It's just that this subject is bigger than personal need. It says something about disability that I refuse to accept and do not want the society I live to take as truth. Whatever our impairment, disabled people can be and are sexy, sexual and superb potential partners. And focusing on the minority who bang on about paid sex being their only option hurts us all, and does nothing to further disabled people's lives.
A final issue I might raise is that if this special needs brothel (catchy name huh?) does open will all the people who work there be fully trained to work with disabled people, will it be able to find full liability insurance in case of something going wrong and will it have the ability to cater for all disabled people, spanning the full gamut of their physical and mental needs?
At the end of the day, if you want to visit a brothel you should be able to. I just feel that the idea of a special one for disabled people won't work, will do more harm than good to those how use it and does nothing to make the world a better place. It might sound a bit optimistic and utopian but I thought that is what campaigning is all about. I don't want to work in the real world, I want to work towards making that world better. Allowing this brothel to open just won't do that in any way.
Labels:
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Disability,
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Sunday, 18 November 2012
Too busy to blog!!!! or why I hate Children In Need so much I found time to blog!
It seems that at the minute I am too busy to blog. In fact I'm too busy to think some days. It's one of the joys of being a freelancer, that when a work offer comes in you have to say Yes. With no way of knowing when the next job might appear, you have this terror that this offer might be the last for a while. Even if the work is rolling in, you can't be sure that it will stay that way. So that's why my blog has been sitting dormant recently.
Annoyingly there have been a load of things I wanted to blog about. Almost every day something came up that got the blood boiling and the fingers hovering over the keyboard. But work got in the way, so the time past. The thing that I really wanted to blog about this week was Children in Need. As someone who appeared on something very similar at the start of my career, with a two day non-stop live appearance as presenter on the Thames Telethon back in 1992, and who had that career severely damaged by the bad reaction of people who felt that charity was wrong, you would have thought I would be in favour of this yearly charity fest. But you would be wrong. You see, on many levels the whole thing is equally wrong.
Let's think about the portrayal of disability first. Anyone who reads my blogs and articles will know that portrayal is very important to me. I feel that the media should try so much harder to ensure that it changes the way it covers disability, yet with this kind of charity event negative portrayal is essential to keep the money coming in.
Poor little crippled kids... they need your help. Their lives are so awful that without your money they will only be sad and their future is bleak. Give generously. Your money will make their tragic lives a little better. Poor little things, it so sad that they are the way they are. Aren't you lucky?
Of course charity always has to pull on your heart strings, but the reason why I did the Telethon way back when is that I thought it would subconsciously say that disabled people can give charity as well as receive it. But after I did it, I was accosted in a lft by the wonderful Vicky Waddington who explained why the charity model of disability - which paints us as victims in need of help - has no positive effects for us disabled types. After talking to her I understood that charity is just plain wrong, especially this kind of jumbo media event. Sure it could be vehicle for real change, with money being raised to pay for the changes we really need in society. Better access, better understanding and more equality. But those are not the kind of things that pull of those heart strings and purse strings. The point of a telethon event is raising money, so that is the sole point of the program. The aim is to raise more money than the last event. That's how you measure the success of it.
Now I could write on this subject for pages, but as I said I'm too damn busy. So I hope that all of you that did watch Children in Need/Stand Up To Cancer/Red Nose Day felt a little uncomfortable during the hours of "fun". Just imagine if it was people like you who were targeted as being deserving of charity and pity. Not a great feeling.
Let's take the item on the One Show that Ade Adepitan presented on dancing for disabled kids. It claimed that giving money to a special dance class for disabled children is a good thing. But if you think about it, wouldn't it be better if the kids that went to this special class could just go to a mainstream dance class with other non-disabled kids and learn to dance? A totally mixed class where everyone was equal. I have just interviewed the fantastic disabled dancer Laura Jones for a Disability Now article, who was the first disabled person to study dance at college. She helped choreograph the Paralympic Opening and Closing Ceremonies, and is a superb dancer. Surely that is the way to go? Not only is it inclusive but it will mean that more disabled people will become professional dancers. But even if they don't, and they just do dance for the love of dance, they will have an experience of being equal to the other members of the class. Not special, different... and in some way less.
To me it's the same for all of the various good causes. To raise money they need to focus on the difference, yet the only way to make the world better is to make everyone see that we are all the same. Whether we're disabled, poor, old, young, or whatever, we are all human. So we all deserve the same chances and until charity aims to do that, it will divide us all. I mean even the title of Children In Need spells out difference.
Anyway, that's enough for now. All I ask is that you think about it.
Annoyingly there have been a load of things I wanted to blog about. Almost every day something came up that got the blood boiling and the fingers hovering over the keyboard. But work got in the way, so the time past. The thing that I really wanted to blog about this week was Children in Need. As someone who appeared on something very similar at the start of my career, with a two day non-stop live appearance as presenter on the Thames Telethon back in 1992, and who had that career severely damaged by the bad reaction of people who felt that charity was wrong, you would have thought I would be in favour of this yearly charity fest. But you would be wrong. You see, on many levels the whole thing is equally wrong.
Let's think about the portrayal of disability first. Anyone who reads my blogs and articles will know that portrayal is very important to me. I feel that the media should try so much harder to ensure that it changes the way it covers disability, yet with this kind of charity event negative portrayal is essential to keep the money coming in.
Poor little crippled kids... they need your help. Their lives are so awful that without your money they will only be sad and their future is bleak. Give generously. Your money will make their tragic lives a little better. Poor little things, it so sad that they are the way they are. Aren't you lucky?
Of course charity always has to pull on your heart strings, but the reason why I did the Telethon way back when is that I thought it would subconsciously say that disabled people can give charity as well as receive it. But after I did it, I was accosted in a lft by the wonderful Vicky Waddington who explained why the charity model of disability - which paints us as victims in need of help - has no positive effects for us disabled types. After talking to her I understood that charity is just plain wrong, especially this kind of jumbo media event. Sure it could be vehicle for real change, with money being raised to pay for the changes we really need in society. Better access, better understanding and more equality. But those are not the kind of things that pull of those heart strings and purse strings. The point of a telethon event is raising money, so that is the sole point of the program. The aim is to raise more money than the last event. That's how you measure the success of it.
Now I could write on this subject for pages, but as I said I'm too damn busy. So I hope that all of you that did watch Children in Need/Stand Up To Cancer/Red Nose Day felt a little uncomfortable during the hours of "fun". Just imagine if it was people like you who were targeted as being deserving of charity and pity. Not a great feeling.
Let's take the item on the One Show that Ade Adepitan presented on dancing for disabled kids. It claimed that giving money to a special dance class for disabled children is a good thing. But if you think about it, wouldn't it be better if the kids that went to this special class could just go to a mainstream dance class with other non-disabled kids and learn to dance? A totally mixed class where everyone was equal. I have just interviewed the fantastic disabled dancer Laura Jones for a Disability Now article, who was the first disabled person to study dance at college. She helped choreograph the Paralympic Opening and Closing Ceremonies, and is a superb dancer. Surely that is the way to go? Not only is it inclusive but it will mean that more disabled people will become professional dancers. But even if they don't, and they just do dance for the love of dance, they will have an experience of being equal to the other members of the class. Not special, different... and in some way less.
To me it's the same for all of the various good causes. To raise money they need to focus on the difference, yet the only way to make the world better is to make everyone see that we are all the same. Whether we're disabled, poor, old, young, or whatever, we are all human. So we all deserve the same chances and until charity aims to do that, it will divide us all. I mean even the title of Children In Need spells out difference.
Anyway, that's enough for now. All I ask is that you think about it.
Labels:
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Disability,
Disability Now,
equality,
Laura Jones,
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Tuesday, 23 October 2012
Thoughts of Chairman Mik
This weekend I paid another visit to the wonderful city of Derby. I had been invited to come up and speak at the launch of the new Speaker's Corner in the city square. It's a great idea. If you live in the area, get yourself down there and get your voice heard.
I took the opportunity to give the following speech about Embracing My Imperfections, a new social enterprise that plans to campaign to champion the idea that we are all beautiful. Here's the script of what I said, although I did wonder off a bit. The joys of speaking live huh?
"Ladies and
gentlemen, boys and girls my name is Mik Scarlet. I'm a broadcaster
and journalist as well as a disability rights campaigner. I would
like to thank the organisers of today for allowing me to talk to you
at this the launch of Derby's Speaker's Corner. When I started
thinking of what to talk to you all about many things came to mind. I
firstly I felt that congratulating Derby on being amazingly
accessible for disabled people might be a great topic. It really is a
great place for those of us who have mobility issues, and
demonstrates that if a place is made accessible then the lives of
disabled people can be improved beyond imagination. Then I wondered
if I could talk about the representation of disabled people in the
media, or should I say that lack of it. Sure we've seen disabled
people everywhere in the media during the Paralympics, but we were
pretty invisible before and we seem to have disappeared again since.
But all of
this may only be of interest to those of you who are listening that
may have a disability or know someone who does. So instead I felt
that this was a great opportunity to bring to your attention a
fantastic social enterprise that is starting up here in your fair
city.
I first
met the very talented local photographer Rei Bennett last year, when
I was writing an article for a magazine on her project Beauty Through
Damage. The driving force behind this project is to show that beauty
exists in everyone, and that illness, disability or difference can
actually make someone more beautiful. The strength and drive that
allows a person to get through an illness or have a happy and
successful life with a disability or physical difference leads those
people to actually be more beautiful on the inside, and this can
shine out. Rei uses her photography to capture this beauty, and she
does so very successfully.
Now not
only is Rei a great artist, but she's a great person and I now count
her as one of my closest friends. During another visit to your
wonderful city, which I have fallen in love with I must tell you, Rei
myself and group of other local talented people decided to take Rei's
project further. We want everyone to appreciate that they are truly
beautiful.
Everywhere
we look there are images of perfection. On TV, in magazines,
advertising, even in shop windows we see images of perfect people.
But now we even find Photoshop computer software is being used to
make already perfect people impossibly perfect, unachievably perfect.
Of course
there is much discussion about how this effects us all and about
what should be done about the growing issue of unachievable images of
perfection. But surely perfection is a construct decided by the wider
society, so shouldn't it be something that mirrors that society? Why
are we so ready to accept the images we see around us? Well I would
say it is a lack of confidence in ourselves. We don't feel that we
are perfect so we put up with these images.
This
is what Rei, myself and the rest of our group are trying to correct
with our social enterprise. We want to everyone to feel that they
are beautiful, that they are perfect. We believe that those elements
that make us different, that make us stand out are exactly what makes
us beautiful, makes us perfect. Whether it's the signs of age, our
size or our imperfections, which can be small... or big - like my
wheelchair, they show our journey through life and our experiences.
This why we have called our group Embracing My
Imperfections. That's what we
want everyone to do, feel happy with the things about them different,
special. In the true meaning of the word. To see their imperfections
as the very things that make them special and beautiful, and to be at
one with the way they look. Which will lead to everyone being much
happier, and so be even more beautiful as that happiness will shine
out of them.
Now
all of this may sound great, but how are we planning do anything?
Well we plan to campaign for better representation in the media, so
that all areas of the media but especially the advertising and
fashion industries mirror the wider world, to work with school and
colleges to give our young people the tools to know that they are all
special, important and beautiful, and to take our message of learning
to love ourselves our to the country and then the world. We hope to
get all of you here
today to join us by adding your voices to our campaign. Together we
can create a world that sees the validity in all of us, that allows
us all to feel happy in our own skin and ensures that our children
grow up to feel that they are all beautiful.
It's
time for all of us to stop putting up with the Tyranny of
Perfection, to know that there
is Beauty Through Damage
and to allow everyone to begin Embracing My Imperfections."
So there you go. I'll keep you all posted on the progress of EMI (which means beauty in Japanese apparently). We are still getting everything together, but are hoping to get the ball rolling early 2013.
I love this photo by the way. Very "power to the people". Appeals to the rebel in me. Watch out politicians... next step Mik for MP... and then PM!
Labels:
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Tuesday, 28 August 2012
How do you like dese tragedy?
Right, it seems that the entire media wants to focus on the tragedy of the disabled, whether we have managed to triumph over it or not. I have always been against this kind of coverage but it seems that people who agree with me are being ignored. So if everyone out there wants to hear the tragedies of disabled people I intend to be on that band wagon. (I do hope you getting the irony here... it doesn't always work in the written medium)
So where shall I begin? Well at the beginning I suppose. I was born in 1965 to Michael and Joyce McGrath (pictured above). They had been trying to have kids for three years and were overjoyed when they found they had fallen pregnant. When I was born my Dad ran round my home town of Luton shouting with joy, hugging strangers and handing out cigars. But as soon as I came home they began to worry. I just would not stop crying. Nurses and doctors visited and told my Mum she was a panicky parent. This went on for five weeks. Just screaming and screaming. Then I went quiet. My parents rushed me to an aunt who was an ex-nurse and she said something was wrong... very wrong. They took me to hospital and it was soon discovered I had cancer. It was in fact an Adrenal Neuroblastoma, which even today is very difficult to beat. I was extremely lucky, as my surgeon had just read about an experimental drug that was being trialled and he applied to have me put on the trial. So with a major surgery, radical radiotherapy and this new chemotherapy, which lasted for five years, I now faced an uncertain future. In fact my [parents were told not to expect me to live long. "Go home and enjoy the time you have left with him" my Mum was told.
So home I went. That's me with my Mum, all ill but very loved. I didn't die though. Obviously. In fact I went from strength to strength. There were hick ups. I got two huge sores on my feet, which nearly killed me with infection, and I broke my right leg almost in half, while trying to pick up a train that I was playing with - kind of forgot I couldn't walk that well - but when I got to the age of five my parents were told he is in remission. Cancer free. I had a future at last. At which point my Father died, from a heart attack. My Mum had a nervous breakdown and life sort of fell apart. My Dad's parents were awful, and our lives were thrown into turmoil yet again. My brother came out worst. My Mum had to spend so much time looking after me that Steve had kind of become Dad's kid. So when Dad suddenly disappeared he couldn't understand what had happened. Mum tried to explain, but he was so little the "Dad is with Jesus" didn't help much. So the great news of my beating the big C didn't matter much once Dad was gone.
I started school and was immediately bullied for being the limpy kid. I fought back, but as anyone who has been the target of the bully knows it's not fun. When I was eight, my Mum remarried. Now I will admit that by now both Steve and me were horribly spoilt kids, but our new Step Dad was... let's say very strict. As he is still around I won't go into it all too deeply, but it wasn't much fun. But time passed as it does and I was soon nearing an age where I could protect myself. But at the age of fifteen my spine collapsed. It actually happened at Wembley Arena at the farewell gig of my hero Gary Numan. I had great seats, in the fifth row, but had to remove myself to the back as the pain was unbearable. I somehow managed to get myself home and fell into bed. The next day I arose early as it was the day of my German O Level (no I did not spend the night studying - I was a Numanoid!) but when I tried to get out of bed I collapsed into a heap on the floor.
Oh, this is the last picture I had of me standing up. I'm in the middle, with my Mum and brother Steve. Anyway, I was still sent to school in a cab, but when I arrived I collapsed again and was rushed to hospital. While I was there I was told I was dying as I had cancer again. But no it was actually a huge spinal collapse, caused by a side effect of my experimental chemo as a baby. After two major operations (14 and 15 hours), two bouts of MRSA and one heart attack on the operating table I spent nine months in hospital only to leave in a wheelchair. No one told me at this time I wouldn't walk again, and so I spent three years fighting to get back on my legs. After this time I went to my surgeon to say I was giving up, only to be told I never had any chance but they didn't tell me that as they didn't want to depress me. Nice.
Now at this point I feel I should stop. I could go on about being in an abusive relationship for years, or my second broken back just as my career was taking off, just over ten years ago, that nearly killed me and has left me in chronic pain, but I actually want to examine that fact that while this might be read as a list of tragedy it all led me to be the person I am today. And I like who I am, so everything that has happened is must be a good thing. To always go on about how becoming disabled is a tragedy means that nothing good can come of it, and to make anyone disabled who succeeds triumphant means that those who are having a hard time coming to terms with it must be lacking something that those super humans (dig, dig C4) have in spades.
All I know is that my disability has shaped my life hugely, and has allowed me to have experiences that most non-disabled people can only dream of. I have been a TV star, toured with Gary Numan, and lived a rock and roll lifestyle second to none. I then met and later married the girl of my dreams, someone so amazing that she cared for me while I recovered from my second broken back and even made it fun. Yes she made six months on bed rest fun. It may sound weird but I know part of what she loves in me is the person I am because of my disability and so for that, if nothing else, I refuse to see any tragedy in anything illness or disability that has entered my life.
But I could easily make my life a list of one awful event after another. I could have then made a big deal of how brave I'd been to triumph over the crap cards life had dealt me. And the media would have lapped it up, but I just cannot. Instead I will say what I have always said... Disability was the making of me. It set me free and allowed me to live a life that I wouldn't give up for a second. Not for legs that work, not for being in tip top health, not even if I could fly. My disability is super positive element in my life, and I just wish that the media would focus on how positive being disabled can be. Just once would be nice.
So as you watch the stream of stories over this Paralympic period, try not to be sucked into the feeling that everyone has in some way beaten the worst thing that could ever happen to them. I mean if they weren't disabled they wouldn't be at the games, they'd be at home watching them on the TV and missing out on the chance to represent their country in a global sporting event. Disability can be a positive thing and if more people believed this then if it ever came into their lives they might be able to cope better, recover quicker and rebuild their life to become better than it was pre-disability.
Right got that off my chest. I'm currently dying my hair ready for the Paralympic Opening Ceremonies tomorrow. Got to look good, even if I am one of 4000. If you see a red head in a chair who is out of time... it's probably me!
So where shall I begin? Well at the beginning I suppose. I was born in 1965 to Michael and Joyce McGrath (pictured above). They had been trying to have kids for three years and were overjoyed when they found they had fallen pregnant. When I was born my Dad ran round my home town of Luton shouting with joy, hugging strangers and handing out cigars. But as soon as I came home they began to worry. I just would not stop crying. Nurses and doctors visited and told my Mum she was a panicky parent. This went on for five weeks. Just screaming and screaming. Then I went quiet. My parents rushed me to an aunt who was an ex-nurse and she said something was wrong... very wrong. They took me to hospital and it was soon discovered I had cancer. It was in fact an Adrenal Neuroblastoma, which even today is very difficult to beat. I was extremely lucky, as my surgeon had just read about an experimental drug that was being trialled and he applied to have me put on the trial. So with a major surgery, radical radiotherapy and this new chemotherapy, which lasted for five years, I now faced an uncertain future. In fact my [parents were told not to expect me to live long. "Go home and enjoy the time you have left with him" my Mum was told.
So home I went. That's me with my Mum, all ill but very loved. I didn't die though. Obviously. In fact I went from strength to strength. There were hick ups. I got two huge sores on my feet, which nearly killed me with infection, and I broke my right leg almost in half, while trying to pick up a train that I was playing with - kind of forgot I couldn't walk that well - but when I got to the age of five my parents were told he is in remission. Cancer free. I had a future at last. At which point my Father died, from a heart attack. My Mum had a nervous breakdown and life sort of fell apart. My Dad's parents were awful, and our lives were thrown into turmoil yet again. My brother came out worst. My Mum had to spend so much time looking after me that Steve had kind of become Dad's kid. So when Dad suddenly disappeared he couldn't understand what had happened. Mum tried to explain, but he was so little the "Dad is with Jesus" didn't help much. So the great news of my beating the big C didn't matter much once Dad was gone.
I started school and was immediately bullied for being the limpy kid. I fought back, but as anyone who has been the target of the bully knows it's not fun. When I was eight, my Mum remarried. Now I will admit that by now both Steve and me were horribly spoilt kids, but our new Step Dad was... let's say very strict. As he is still around I won't go into it all too deeply, but it wasn't much fun. But time passed as it does and I was soon nearing an age where I could protect myself. But at the age of fifteen my spine collapsed. It actually happened at Wembley Arena at the farewell gig of my hero Gary Numan. I had great seats, in the fifth row, but had to remove myself to the back as the pain was unbearable. I somehow managed to get myself home and fell into bed. The next day I arose early as it was the day of my German O Level (no I did not spend the night studying - I was a Numanoid!) but when I tried to get out of bed I collapsed into a heap on the floor.
Oh, this is the last picture I had of me standing up. I'm in the middle, with my Mum and brother Steve. Anyway, I was still sent to school in a cab, but when I arrived I collapsed again and was rushed to hospital. While I was there I was told I was dying as I had cancer again. But no it was actually a huge spinal collapse, caused by a side effect of my experimental chemo as a baby. After two major operations (14 and 15 hours), two bouts of MRSA and one heart attack on the operating table I spent nine months in hospital only to leave in a wheelchair. No one told me at this time I wouldn't walk again, and so I spent three years fighting to get back on my legs. After this time I went to my surgeon to say I was giving up, only to be told I never had any chance but they didn't tell me that as they didn't want to depress me. Nice.
Now at this point I feel I should stop. I could go on about being in an abusive relationship for years, or my second broken back just as my career was taking off, just over ten years ago, that nearly killed me and has left me in chronic pain, but I actually want to examine that fact that while this might be read as a list of tragedy it all led me to be the person I am today. And I like who I am, so everything that has happened is must be a good thing. To always go on about how becoming disabled is a tragedy means that nothing good can come of it, and to make anyone disabled who succeeds triumphant means that those who are having a hard time coming to terms with it must be lacking something that those super humans (dig, dig C4) have in spades.
All I know is that my disability has shaped my life hugely, and has allowed me to have experiences that most non-disabled people can only dream of. I have been a TV star, toured with Gary Numan, and lived a rock and roll lifestyle second to none. I then met and later married the girl of my dreams, someone so amazing that she cared for me while I recovered from my second broken back and even made it fun. Yes she made six months on bed rest fun. It may sound weird but I know part of what she loves in me is the person I am because of my disability and so for that, if nothing else, I refuse to see any tragedy in anything illness or disability that has entered my life.
But I could easily make my life a list of one awful event after another. I could have then made a big deal of how brave I'd been to triumph over the crap cards life had dealt me. And the media would have lapped it up, but I just cannot. Instead I will say what I have always said... Disability was the making of me. It set me free and allowed me to live a life that I wouldn't give up for a second. Not for legs that work, not for being in tip top health, not even if I could fly. My disability is super positive element in my life, and I just wish that the media would focus on how positive being disabled can be. Just once would be nice.
So as you watch the stream of stories over this Paralympic period, try not to be sucked into the feeling that everyone has in some way beaten the worst thing that could ever happen to them. I mean if they weren't disabled they wouldn't be at the games, they'd be at home watching them on the TV and missing out on the chance to represent their country in a global sporting event. Disability can be a positive thing and if more people believed this then if it ever came into their lives they might be able to cope better, recover quicker and rebuild their life to become better than it was pre-disability.
Right got that off my chest. I'm currently dying my hair ready for the Paralympic Opening Ceremonies tomorrow. Got to look good, even if I am one of 4000. If you see a red head in a chair who is out of time... it's probably me!
Labels:
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Monday, 20 August 2012
Busy, Busy, Busy!!!!
Hi Everyone.
Sorry for going quiet recently. I'm crazy busy at the minute, getting ready for the Paralympic Opening Ceremonies. I can't say any more, as we all want to keep the secret, but it's going to be huge. I'm also writing a series of pieces for Time Out about the games, so watch out for those.
On top of that I have an article on the rehearsals in the next issue of Disability Now.
Anyway, the picture above is some of the great people I have met and am working with. So make sure you are glued to Channel 4 on August 29th.
I'm swatting up on Wheelchair Rugby, as I will be presenting the in-game coverage at the arena. So if you've got tickets to see this high octane sport, see you there. Can't wait.
Normal service will be resumed once the games end.
Mik
Sorry for going quiet recently. I'm crazy busy at the minute, getting ready for the Paralympic Opening Ceremonies. I can't say any more, as we all want to keep the secret, but it's going to be huge. I'm also writing a series of pieces for Time Out about the games, so watch out for those.
On top of that I have an article on the rehearsals in the next issue of Disability Now.
Anyway, the picture above is some of the great people I have met and am working with. So make sure you are glued to Channel 4 on August 29th.
I'm swatting up on Wheelchair Rugby, as I will be presenting the in-game coverage at the arena. So if you've got tickets to see this high octane sport, see you there. Can't wait.
Normal service will be resumed once the games end.
Mik
Labels:
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Disability,
Disability Now,
paralympics,
rugby,
Time Out magazine,
wheelchair
Wednesday, 25 July 2012
Whatever next?
I just had to put finger to keypad to express my feelings over a phenomenon that has recently appeared on the nation's TV screens... adverts featuring disabled people!
During my career in the media, which will enter it's 25th year in 2013, I have discussed the lack of disabled people in advertising with several ad execs, normally at boozy media parties. They all told me that the industry was all about image and impression. The big worry was that if they used disabled actor or models it might create a subconscious association in the public's mind between the product being advertised and disability, thus making people feel the product might be sub standard or in some way less. Invalid you might say. Whether it's true or not, in the advertising world the product's the thing so anything that might damage the product's image is a no no. So hence no disabled people.
Occasionally someone in the industry decides to buck this trend and we have popped up in an ad. A big one was the advert for a brand of trainer (I can't remember which one so that didn't work eh?) which featured a group of wheelchair racers. Sure it was great to see disabled people in an ad and it was everywhere, but I always felt that the exec who had the idea kind of missed the point. As a wheelchair user I still own shoes and boots I purchased over a decade ago and they look like new. As training shoes are designed to make running easier, safer and more comfortable the idea of using wheelchair users to advertise them just can't make the viewer focus on these selling points. It was obviously done to gain publicity, which it did very well. Doubt it old more shoes though.
I have even auditioned for parts in adverts myself, but I only ever landed a part in an ad for transmission in France. I have no idea what the ad was for as I don't speak French. The most recent rejection was for a major department store and instead of a real wheelchair user the part of "father in wheelchair" went to a non-disabled actor who had his leg put in plaster. This clearly demonstrated that the condition the character was in was temporary, was something most people could identify with and so would have no subconscious impact on the advert's target audience.
So I was stunned to see not one but TWO television adverts that feature disabled people hit our screens in short succession. Just like buses, you wait for ages and then two come along at once. The first is a Barclay's Bank ad which features a wheelchair using amputee. It makes no mention of his disability and he is just a typical bank customer, which is really refreshing.
Without being too criticial, I am unsure why an amputee who has such a high tech and expensive prosthetic leg would use a wheelchair to visit his bank. I do wonder if someone in a brainstorming session said "we need a wheelchair", and so any one with a wheelchair would do. The guys chair is obviously a sports chair, so if he was playing basketball in the ad it might makes sense. I do wonder if having the guy walk in on his new robot leg would have made an equal impact. But hey, this might just be soar grapes as I didn't even hear about the audition. What is my agent doing? Whatever the nuances of the ad, it's a big step, or wheel, forward.
But the advert that makes me smile every time I see it, and that fills my heart with a feeling of hope, is the superb Dove shampoo ad "Feeling is believing". This is everything that adverts should be and more. The most amazing thing about the ad is that it uses the featured lady's disability as a vehicle to demonstrate the USP of the product. She's blind and so she can't see her hair but she knows how fantastic her hair looks by the way it feels. This ad uses disability as part of the selling process which is a massive leap forward.
I am sure that some visually impaired people out there might worry that it does play into the stereotype that of you loose your sight your other senses become better, but I don't know if I would agree. To me this ad marks a change that I hope carries on forever. Maybe we'll see a wheelchair user advertising hand soap next. Let's face we always end up with dirty hands with all the filth that is on our streets so if a soap gets my hands clean it really works. It's that kind of thinking that makes the Dove ad stand out to me and long may it continue.
But why have things changed suddenly, in such a short space of time? Well firstly let's keep our fingers crossed that it isn't a flash in the pan. Hopefully we now start seeing disabled people in advertising, both as part of the real world and as models and featured characters. I know that many in the Paralympic movement claim that this year's games will change the way society thinks about disability and perhaps this is the first sign that they are right. Maybe the advertising industry has just decided the time is right to be more inclusive. Whatever the reason, if we want this to mark a change in the way advertising works then all disabled people can do is go out a buy the products. Actually I should take this opportunity to congratulate the people involved in both of these adverts. Keep up the good work and don't let anyone in your industry tell you you've made a mistake. No one will associate your product with negativity. In fact I am sure that the Dove ad will actually make the product fly off the shelves.
Remember this moment folks. It might be the beginning of a real change and be one we talk about to our grand kids. I'm off to buy some shampoo and I know which product I'll be purchasing!
Before I go I just had to show you an American ad from Nike that just shows how far ahead they are in the US. Disability, product placement and HUMOUR! And it makes me want to go out and Just Do It!
During my career in the media, which will enter it's 25th year in 2013, I have discussed the lack of disabled people in advertising with several ad execs, normally at boozy media parties. They all told me that the industry was all about image and impression. The big worry was that if they used disabled actor or models it might create a subconscious association in the public's mind between the product being advertised and disability, thus making people feel the product might be sub standard or in some way less. Invalid you might say. Whether it's true or not, in the advertising world the product's the thing so anything that might damage the product's image is a no no. So hence no disabled people.
Occasionally someone in the industry decides to buck this trend and we have popped up in an ad. A big one was the advert for a brand of trainer (I can't remember which one so that didn't work eh?) which featured a group of wheelchair racers. Sure it was great to see disabled people in an ad and it was everywhere, but I always felt that the exec who had the idea kind of missed the point. As a wheelchair user I still own shoes and boots I purchased over a decade ago and they look like new. As training shoes are designed to make running easier, safer and more comfortable the idea of using wheelchair users to advertise them just can't make the viewer focus on these selling points. It was obviously done to gain publicity, which it did very well. Doubt it old more shoes though.
I have even auditioned for parts in adverts myself, but I only ever landed a part in an ad for transmission in France. I have no idea what the ad was for as I don't speak French. The most recent rejection was for a major department store and instead of a real wheelchair user the part of "father in wheelchair" went to a non-disabled actor who had his leg put in plaster. This clearly demonstrated that the condition the character was in was temporary, was something most people could identify with and so would have no subconscious impact on the advert's target audience.
So I was stunned to see not one but TWO television adverts that feature disabled people hit our screens in short succession. Just like buses, you wait for ages and then two come along at once. The first is a Barclay's Bank ad which features a wheelchair using amputee. It makes no mention of his disability and he is just a typical bank customer, which is really refreshing.
Without being too criticial, I am unsure why an amputee who has such a high tech and expensive prosthetic leg would use a wheelchair to visit his bank. I do wonder if someone in a brainstorming session said "we need a wheelchair", and so any one with a wheelchair would do. The guys chair is obviously a sports chair, so if he was playing basketball in the ad it might makes sense. I do wonder if having the guy walk in on his new robot leg would have made an equal impact. But hey, this might just be soar grapes as I didn't even hear about the audition. What is my agent doing? Whatever the nuances of the ad, it's a big step, or wheel, forward.
But the advert that makes me smile every time I see it, and that fills my heart with a feeling of hope, is the superb Dove shampoo ad "Feeling is believing". This is everything that adverts should be and more. The most amazing thing about the ad is that it uses the featured lady's disability as a vehicle to demonstrate the USP of the product. She's blind and so she can't see her hair but she knows how fantastic her hair looks by the way it feels. This ad uses disability as part of the selling process which is a massive leap forward.
I am sure that some visually impaired people out there might worry that it does play into the stereotype that of you loose your sight your other senses become better, but I don't know if I would agree. To me this ad marks a change that I hope carries on forever. Maybe we'll see a wheelchair user advertising hand soap next. Let's face we always end up with dirty hands with all the filth that is on our streets so if a soap gets my hands clean it really works. It's that kind of thinking that makes the Dove ad stand out to me and long may it continue.
But why have things changed suddenly, in such a short space of time? Well firstly let's keep our fingers crossed that it isn't a flash in the pan. Hopefully we now start seeing disabled people in advertising, both as part of the real world and as models and featured characters. I know that many in the Paralympic movement claim that this year's games will change the way society thinks about disability and perhaps this is the first sign that they are right. Maybe the advertising industry has just decided the time is right to be more inclusive. Whatever the reason, if we want this to mark a change in the way advertising works then all disabled people can do is go out a buy the products. Actually I should take this opportunity to congratulate the people involved in both of these adverts. Keep up the good work and don't let anyone in your industry tell you you've made a mistake. No one will associate your product with negativity. In fact I am sure that the Dove ad will actually make the product fly off the shelves.
Remember this moment folks. It might be the beginning of a real change and be one we talk about to our grand kids. I'm off to buy some shampoo and I know which product I'll be purchasing!
Before I go I just had to show you an American ad from Nike that just shows how far ahead they are in the US. Disability, product placement and HUMOUR! And it makes me want to go out and Just Do It!
Labels:
advertising,
bank,
barclays,
blind,
Disability,
dove,
media,
shampoo,
Television,
TV,
visually impaired
Monday, 16 July 2012
DadaFest 2012
Last Thursday I had the
honour of being the compare and master of ceremonies at the launch
event of the UK's biggest festival of Disability and Deaf arts,
DadaFest. Held at the Bluecoat in Liverpool, this event marked the
start of two months of the very best that the Disability and Deaf
arts scene has to offer, with contributions from artists and
performers from all over the world. I had been pestering DadaFest's
CEO Ruth Gould and her team for some time to try to get involved with
the festival and so when the call came to come up and compare the
opening day I jumped for joy.
The event kicked off with
drinkies and nibbles upstairs at the Bluecoat bar, with speeches from
the key players in putting on DadaFest 2012. Patron and major player
in disability politics Sir Bert Massie gave the audience his take on
how the disability and deaf arts scene plays a massive role in
advancing the understanding of disability in the wider community and
made a plea for big business to see the potential in funding the
fantastic creative talent on show at the festival. Next Sue Harrison
who is the chair of the Bluecoat outlined what we should expect from
the next two months, followed by speeches from the key funders of
DadaFest, Councillor Wendy Simon from Liverpool City Council and
Julia Keenen, the lead Arts Council officer for DadaFest. They both
outlined why they felt that DadaFest is so essential to the arts
scene and to Liverpool itself. As this year's DadaFest is an official
part of the Cultural Olympiad, LOCOG's Nigel Hinds then explored the
history of culture and the games and how DadaFest fitted in to the
whole 2012 Olympic/Paralympic experience. Lastly Ruth Gould thanked
everyone for coming, gave us an outline of what to expect during the
run of the festival and then declared DadaFest 2012 open. She then
awarded a cheque to local dancer and sports star Shauna Hogan, who is
about to go and compete in the Special Olympics.
The proceedings then moved
on to the private view of the UK premier of the exhibition Niet
Normaal. Originally from the Netherlands, where the phrase is used to
mean 'cool' as no one wants to be thought of as normal, this version
was curated by Ine Gevers, who originally developed the show, and
Garry Robson. I can't truly explain how fantastic this exhibitions
is. It not only explores the question of normality and conformity
from a myriad of different angles and mediums, but each work is
strong, beautiful and thought provoking in their own right.
My personal highlights
were Pharmacopeia by Suzie Freeman, Dr. Liz Lee and David Critchley,
which explores the modern relationship between medicine and day to
day life by creating an installation that charts the pills taken
during two peoples life times, Cast from Nature by Christine Borland,
that raises questions of beauty
within artistic representations of the dead body by contrasting the
positioning of two casts of a dead body, Bad Mummy by Birgit Deiker,
that uses fetish imagery to examine motherhood and body image, and
Ambush - Non
Traceptives with Intelligent Sperm Selector by Andreas
Vinther Mølgaard, who questions the consequences of new
technologies with this mock up of a new condom that allows the user
to screen for genetic mistakes.
A
piece that had a personal impact, as someone who had over £250,000
worth of titanium in my body holding my spine together was the video
work by Floris Kaayck, Metalosis Maligna. Filmed as a mock-umentary,
Kaayck uses the conventions of television documentary to examine our
relationships with mechanical implants by creating the fictional
disease of the title. I could go on but if you can, you must visit
Niet Normaal. An amazing exhibition which you miss at your peril.
Later on we moved to the
Bluecoat performance space, for a night of entertainment. First on
the bill was The BeatHovens, who combine rock and rap to great
effect. Next up we had poetry from the superb Roger Cliffe-Thompson,
who continued the Liverpool tradition of poetry that is both funny
and insightful with a strong political heart. To follow things got a
bit sexy with the first of two burlesque acts of the night, Diva
Hollywood and her performance Black Swan. She told me later that she
created this fun sexy dance to allow her to explore how MS effects
the way her body functions. This act demonstrates what DadaFest is
all about, using art and performance to find new ways of examining
disability. Once the feathers had been swept off the stage, the
hilarious comic Vincent Biljio put us in stitches. (Please forgive my
useless attempt at pronouncing your name Vincent - I will try harder
next time). With the tears of laughter still in my eyes I announced
the next act, Burlesque act Millie Dollar. All I can say is do try to
catch her act as she is one to watch... oo-er. All over come and hot
and bothered, it was now time for the Beathovens to return to the
stage and play the evening out. They managed two encores, topping the
night off with the most amazing version of Led Zep's Whole Lot of
Love.
As the day ended I did
hope that we might all retire to a local hostelry to celebrate, but
the whole team were dead on their feet. The work that must have gone
into putting on this year's DadaFest must have been phenomenal, and
it had obviously caught up with them. So instead Diane and I wondered
the streets of Liverpool, which is another city that seems to be
confronting accessible environmental design head on. While the Albert
Dock is a little difficult, mainly due to blooming cobbles
everywhere, the rest of Liverpool was great. The Bluecoat Arts Centre
itself is also superbly accessible, and as it an old building it just
goes to show that it can be done.
All in all it was an
amazing day. The are some fantastic events, shows and performances on
over the next two months as well as Niet Normaal. The whole
experience really demonstrates that the Disability and Deaf arts
scene is a thriving and vibrant one, and I believe it is going to be
the place to look for the next big talent. Or two, or three....
DadaFest runs from July
13th to September 2nd, with live performances beginning on August
18th.
For more details check out
www.dadafest.co.uk
Labels:
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Thursday, 17 May 2012
The Upload begins....
I am currently at the start of a marathon encoding session, with a pile of old VHS tapes filled with some of the programs I recorded for TV. I thought I'd lost them, but my Mum found them all in the loft of our family home. It's weird experience watching yourself from over twenty years ago. I never really watched myself when these went out, as it made me cringe with embarrassment, so having to sit and watch hours and hours of TV where a younger version of me smiles out of my TV screen fills me with a myriad of emotions.
The craziest thing, other than how young I look, is the fact the I have so many hours of TV footage with disabled people in it. Think of today's schedules and we are invisible, unless it's some kind of stare at the freaks type program (mentioning no names). This series of clips from Beat That really shows how far backwards we have gone. Beat That was a prime time kids series on C4 that got millions of viewers per week, yet it was fronted by a wheelchair user and had a mixture of kids, some disabled, some not. The disabled thing wasn't really mentioned in the publicity or made a big deal of, and C4 was proud of the fact that their first kids series was fully inclusive without banging on about it. This was the future for TV. Disabled people would just be part of what you saw on your goggle box. They were really ahead of the game... so far ahead that no one has caught up, even today. Not even C4 themselves.
Actually that's not really true, CBBC regularly has disabled kids on some of their shows and doesn't make a feature of it. But they are the only ones. The second series of Beat That was transmitted in 1992, so it's exactly 20 years ago yet there are still very few disabled people disabled people on our TV screens at all. Even if there is a change in the representation of disabled people on our screens in the next few months, with the Paralympic coverage, it will only be catching up to the place we were at two decades ago. Why did the TV industry drop the ball in such a big way? I wish I knew. I do know that for someone who was one of the best known disabled people in the media, I suddenly found it impossible to find work around the year 2000. Now everyone seems obsessed with New Talent, but most of the people that are discovered during the many talent searches that have taken place since Beat That went out ended up being ignored by the industry.
I think it is really important that everyone remembers that not that long ago disabled people were on our screens. I mean between Beat That and the BBC disability show From The Edge I alone was on almost every week. And there were quite few other well known faces too. Whatever does come along in the next few years, we mustn't forget that we are only playing catch up.
Over the next few days I plan to put up some of my music stuff too, and if you think the TV industry doesn't like disabled people you wait until I tell you about the horrors I witnessed from music types! Stay Tuned Folks!
Labels:
Beat That,
CBBC,
Channel 4,
children's TV,
Disability,
Luke Jeans,
mik scarlet,
paralympics,
portrayal,
Television,
Tiny Epic
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